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Surgery Story - Cameron Mark Rondi

 

Our Cranio Journey has been a log winding rocky emotional rollercoaster, leaving Cameron to be the victim, which is just heart wrenching for any parent.

It is now July 2013, Cameron’s health is generally good, and he has some allergies which leaves him with sinusitis at times. Since his last Surgery Cam has had 2 sets of Grommets, has been hospitalised for Meningitis, he has had further intervention with regards to his eye, he had a surgical procedure done with Dr Gideon Du Plessis – Ophthalmologist from Pretoria Eye Institute - 22 August 2012 – the procedure performed was a Strabismus, where they cut the muscles at the back of his eye as his eyes would roll back as he had no control over this.   

In January 2013 Cameron had his eyes tested reflecting the following results 

  • Convergence is poor, convergence point is remote, is unable to maintain a convergent eye position.

  • The eyes show a vertical misalignment that may, under strain, lead to double vision.

  •  The results show that there is no stereovision present. – He has no depth or three dimensional vision

  • Prescribed glasses for permanent wear. 

  • Attendance of general vision therapy program that is specifically designed to remediate  eye movement skills and overall binocular functioning

Cameron now attends Occupational therapy once a week to address sensory integration difficulties as well as postural control deficits, gross motor, fine motor and perceptual difficulties.  

The latest feedback we have from his Gross Motor analyst is that his visual discrimination is not on standard.  Reversals and inversions are becoming a challenge. Visual memory and visual sequencing are also of concern. Often his visual concept of presented matter will lack detail.  Visual analysis and synthesis is creating major problems. 

The school was convinced he was having seizures so off we went for an EEG – to have clear results reflect. 

 https://fbcdn-sphotos-a-a.akamaihd.net/hphotos-ak-prn1/45654_10151319613890426_514910236_n.jpg

We will be conducting a Fundoscopy to establish current level of intracranial pressure present on Friday the 09 July.

Cameron has also recently had an Education Psychologist assessment done to assist us with establishing his educational future; we will be getting the feedback this week.

All feedback has established that Cameron will still need the help of Allied practitioners, namely Occupational therapy, Optometry and Physio therapy, to assist and help him overcome the areas of concern.

16 October 2013 – we will be praying for 3 years post-surgery

It is amazing that given Cameron’s daily challenges that he is facing and his awareness of his head deformation or as he calls it “my skew head” he deals well, I can see his battles emotionally sometimes with the way in which children stare at him or the questions they are, yet know we still have many hurdles to jump on this Cranio Journey. 

He acts like a normal 5 year old on a daily basis, shaving his hair off despite his scars so he can be an army man, and singing along like a Gangster rapper trying to convince us he does not need to wear his glasses despite the enormous challenge and burden he is living with. 

https://fbcdn-sphotos-h-a.akamaihd.net/hphotos-ak-ash3/p206x206/553939_10150969953411504_1897090807_n.jpg  https://fbcdn-sphotos-d-a.akamaihd.net/hphotos-ak-prn2/6342_10151151920975426_2135964611_n.jpg  https://fbcdn-sphotos-d-a.akamaihd.net/hphotos-ak-prn1/59902_10151163941960426_1347895338_n.jpg   https://fbcdn-sphotos-g-a.akamaihd.net/hphotos-ak-prn1/18814_10151306528905426_1348302514_n.jpg       

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Surgery stories
    

Cameron Rondi
Cameron Mark Rondi was born on the 10th of March at Olivedale Hospital. When he was born he was diagnosed with Craniosynosis, it was picked up at birth as he was born with facial distortion ...

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Blake Campbell
Blakes surgery day was 4 April 2006...

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Azia-lynn
(not so) little Azia-lynn is born 1 week early (on her original due date!) 8lb 15oz and 21 inches...

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Tiaan Heyns
Tiaan was diagnosed with Sagittal Synostosis at six weeks of age.

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Chris-Lee - Our Miracle Child
In January 2007 after several tests and treatment – I was told that I will not be able to have children. 

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Claire Badden

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For more information or support, please contact Robyn Rondi on - robyn.rondi@hotmail.com  or  082 601 8585