Our Cranio Journey
has been a log winding rocky emotional rollercoaster,
leaving Cameron to be the victim, which is just heart
wrenching for any parent.
It is now
July 2013, Cameron’s health is generally good, and he
has some allergies which leaves him with sinusitis at
times. Since his last Surgery Cam has had 2 sets of
Grommets, has been hospitalised for Meningitis, he has
had further intervention with regards to his eye, he had
a surgical procedure done with Dr Gideon Du Plessis –
Ophthalmologist from Pretoria Eye Institute - 22 August
2012 – the procedure performed was a Strabismus, where
they cut the muscles at the back of his eye as his eyes
would roll back as he had no control over this.
2013 Cameron had his eyes tested reflecting the
is poor, convergence point is remote, is unable to
maintain a convergent eye position.
show a vertical misalignment that may, under strain,
lead to double vision.
results show that there is no stereovision present.
– He has no depth or three dimensional vision
Prescribed glasses for permanent wear.
Attendance of general vision therapy program that is
specifically designed to remediate eye movement
skills and overall binocular functioning
now attends Occupational therapy once a week to
sensory integration difficulties as well as postural
control deficits, gross motor, fine motor and perceptual
feedback we have from his Gross Motor analyst is that
his visual discrimination is not on standard. Reversals
and inversions are becoming a challenge. Visual memory
and visual sequencing are also of concern. Often his
visual concept of presented matter will lack detail.
Visual analysis and synthesis is creating major
was convinced he was having seizures so off we went for
an EEG – to have clear results reflect.
We will be
conducting a Fundoscopy to establish current level of
intracranial pressure present on Friday the 09 July.
Cameron has also
recently had an Education Psychologist assessment done
to assist us with establishing his educational future;
we will be getting the feedback this week.
All feedback has
established that Cameron will still need the help of
Allied practitioners, namely Occupational therapy,
Optometry and Physio therapy, to assist and help him
overcome the areas of concern.
16 October 2013
– we will be praying for 3 years post-surgery
It is amazing that
given Cameron’s daily challenges that he is facing and
his awareness of his head deformation or as he calls it
“my skew head” he deals well, I can see his battles
emotionally sometimes with the way in which children
stare at him or the questions they are, yet know we
still have many hurdles to jump on this Cranio Journey.
He acts like a
normal 5 year old on a daily basis, shaving his hair off
despite his scars so he can be an army man, and singing
along like a Gangster rapper trying to convince us he
does not need to wear his glasses despite the enormous
challenge and burden he is living with.