Chris-Lee – Our Miracle Child
In January 2007 after several tests
and treatment – I was told that I will not be able to
have children. 3 Months Later – I found out I was
pregnant…..and there our Miracle Story started.
We called Chris-Lee our Miracle child
from the day I found out I was pregnant. I was blessed
with a wonderful pregnancy – and when I found out she
was a little girl – she was named Chris-Lee (named after
her daddy and late Great Grandad)
She was born on 30 November 2008 and
the same day we were told she might have been “squashed”
a bit and this caused her head to be a funny shape. 6
Weeks passed and I felt uneasy about all the comments I
received on her head – and it was then we consulted with
a PEAD – who then ran the tests and confirmed she had
Saggital Synostosis. The worst news any first time
mommy and daddy can get….as you only want this perfect
life you planned for your little Miracle. Our long and
painful, yet grateful journey started on that day.
Trips to doctors, choices to be made, tears of fear, non
stop prayers for a miracle to heal our child, feelings
of anger…..and the list continues.
We met with Dr Kelly in Feb08 where
he made us feel a little more at ease for the first time
since we found out about the operation.
Our little one was then scheduled for
her operation on 8 May 2008. What a wait – must have
been the longest 3 months of our entire life.
On 7 May 2008 we started packing her
last things for the operation – when she started this
terrible sneeze and overnight our princess got the worst
bronchitis you could imagine. We were devastated – as
we just wanted the operation to be over and done with.
She then ended up spending a week in hospital – but not
for the operation, but the bronchitis.
The entire operation was canceled –
and we had to wait 2 weeks for a new scheduled date.
Chris was then scheduled to be operated on 2 June 2008.
We booked in at the hospital on the
Sunday and I stayed with my LO the entire evening. I
sat next to her bed – and prayed non stop. I just cried
and cried – and could not stop feeling like the worst
mom in the world – for putting her through this. A
chain prayer went out – and I received SMS’s the entire
night of the 1st of June as well as the
entire day of the operation. Till today I believe it
was all these prayers that got us through this long day.
At 04h30 my husband, mom and sister
in law came to the hospital – and came to wish Chris
luck before she went into theater. I clinged onto her
until they came with this big white trolley bed and took
her from me. My husband took her and said he will walk
down to the theater – where he stayed till they put her
under aneastetic. He is such a strong man – I would
never have been able to hold her while they put all
those pipes in. He must have broken from inside – but
stayed so strong. Minutes later he joined me in the
coffee area – where the doctor came out to break news to
us that the blood was not correct – and they have to
wait for the correct blood to be delivered to continue –
but she was already under aneastetic. This was just too
much to handle at that point – we felt so stressed out.
The blood arrived quickly and the operation started.
The 6h50 minutes was the longest 7 hours of our lives.
We climbed every stair, counted every movement of the
ticks on the clocks, counted the tiles in the waiting
room – you name it – we tried it to get the time
passed. We just prayed and prayed – until that moment
the doors opened and the doctors came out to advise us
all went well.
We waited another 25 minutes before
she came out recovery and we could see her. She looked
like a Angel on that bed….she was so brave – and her
mommy and daddy was so proud of her. A real fighter.
She was very weak and very pale – but all expected from
the research we did. She received 2 blood transfusions
– but other than that had no complications.
My first words were: “My poppie so
koppie is rond”…..and that was amazing….her head was
round – and it was so obvious….
We spent every minute possibly
allowed with her, and she recuperated so quickly.
Seeing her in so much pain and hearing those little
cries – broke our hearts – but we were just thankful
that the operation went well – and that she was going to
She was in ICU for 3 days and then
moved to the High Care unit on day 3 and by day 5 she
was in her Cot at home….as happy as can be.
The scars healed quickly and by her 2
week check up the doctor was very pleased with the
She had her 3 month check up in
September – and to date the doctor is still very
satisfied and only wants to see us in 6 months time.
We are so thankful for the doctors
hands who were used by God to heal our little Miracle
It was the longest year of our lives
– but my husband and I are truelly grateful of all the
things we’ve learnt from this experience and most of all
– that Chris-Lee is healthy and the most beautiful
little girl in the world.
To all the parents who still need to
travel this trying journey….best of luck –and you are in
It is too much to handle for us as
humans – hand it over to God – He will carry you through
Kidz are so much stronger than we can
Before the operation
1 Hour post op
Day 2 post op
Day 3 post op
home - day 5
1 week post op
3 months post op