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Crouzon Sydrome

 
This syndrome was originally described in 1912 by a French neurosurgeon. He described four essential characteristics: exorbitism, retromaxillism, inframaxillism and parodoxic retrogenia.

The incidence of this syndrome appears to be approximately one in 25,000 in the general population. It is inherited as an autosomal dominant pattern with variable expression. However, approximately 25% of reported cases have no family history and represent a new mutation.

For those interested in learning more about the genetics of Crouzon syndrome, meeting with a geneticist can provide the opportunity for an interactive discussion. The Donald Gordon Medical Centre in Johannesburg has registered Geneticists.
 
 
Surgery stories
    

Cameron Rondi
Cameron Mark Rondi was born on the 10th of March at Olivedale Hospital. When he was born he was diagnosed with Craniosynosis, it was picked up at birth as he was born with facial distortion ...

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Blake Campbell
Blakes surgery day was 4 April 2006...

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Azia-lynn
(not so) little Azia-lynn is born 1 week early (on her original due date!) 8lb 15oz and 21 inches...

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Tiaan Heyns
Tiaan was diagnosed with Sagittal Synostosis at six weeks of age.

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Chris-Lee - Our Miracle Child
In January 2007 after several tests and treatment I was told that I will not be able to have children. 

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Claire Badden

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For more information or support, please contact Robyn Rondi on - robyn.rondi@hotmail.com  or  082 601 8585