When it comes to Craniosynostosis you
need to take the time to look for the beauty within.
The best part of become a Cranio family is Education of
The below needs to be credited to the Author Kristi
How to deal with individuals
who have Craniofacial or Other Facial Differences:-
1 . Do not talk down to someone
with a facial difference.
Most have normal intelligence. People with facial
differences don't need or want to be talked to as if
they don't understand.
2. Don't stare and point.
People with facial differences are human. Besides it is
not polite to point and stare. It makes people with
facial differences feel uncomfortable.
3. Do ask!
People with facial differences often hear parents tell
their children that it is not polite to ask questions.
As an adult with a facial difference, I want kids to ask
questions. I don't mind answering because I enjoy
educating others about my facial difference. Parents
without children with differences, I encourage you to
let you children ask questions.. That is how children
4. Don't avoid eye contact.
People with facial differences are very much aware of
this. It makes the person with a facial difference feel
negatively about themselves. Often people with facial
differences have self-esteem issues.
5. Don't tease or bully.
This is true for anyone not just people with facial
differences. Teasing and bullying is hurtful and can
have tragic consequences. We all have differences
whether we realize it or not.
6. Don't exaggerate someone's facial difference
This means do not use inappropriate language such as
ravaged face or smashed-in face. It is demeaning, plain
and simple. Simply say.. a person with a facial
difference, a person with a congenital facial
difference, or a person with an acquired facial
7. Use people first language
Emphasize the person first not the difference. Don't
use phrases such as cleft-affected or cleftie. I don't
want to be known as an arhinia person. I want to be
known as a person with congenital arhinia.
8. Don't use out-of-date language.
There are some words that just need not be repeated.
Harelip is one of them. Don't use the word because it
has a negative connotation to anyone with a cleft lip.
(It literally means the lip of a hare.) People with
cleft lips are not rabbits.
9. Don't pity people with facial differences.
People with facial differences do not want sympathy
or pity. People with facial differences want three
things: Understanding, respect, and acceptance. People
with facial differences are people too!
10. Teach Your Children Acceptance and understanding
Parents, stop sheltering your children... Teach them
to understand and accept ALL difference. Our world can
become a better world but it begins with adults teaching
our children. Set an example and be the difference.
Look beyond the imperfections of flesh and bone to
see who hides behind. Join me in celebration of true
beauty of heart and soul. Learn to accept beauty in the
uniqueness of each individual. Smile and accept instead
of shunning and teasing.
We are all different no one is perfect.
Each of us have flaws although some more than others.
However, if you look beyond you might see the true
beauty that may have been missed.