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Cranio Support / Doctors

 
It is so important that you have support throughout your Cranio Journey. It helps to talk to someone who has been there. Get in touch with Cranio families who have experienced the trauma of a Cranio Journey. I have found overwhelming support from individuals that have Cranio Kids or are themselves Cranio patients. They are all willing to share their experiences and most are willing to provide support.
A huge thank you to some of the Cranio Moms or patients, Natasha, Nicole Baden, Katie Davis, Tom Head Laura Pitney, Tracey Campbell, Jennifer Boyer, Tawnia Jamesson, Tracey Greene, Jean Moor, who have all assisted us through and given me so much Cranio info. (Most are Australian or USA Based)

Useful links

Below is a list of reference websites that I have found useful in my Cranio Journey, I hope they are able to provide you with assistance and support

The majority are international sites

If you know of a site that should be on this list, please let me know - robyn.rondi@hotmail.com

For more information or support, please contact Robyn Rondi on - robyn.rondi@hotmail.com  or  082 601 8585
 


CRANIO FACIAL UNIT JOHANNESBURG
SUNNINGHILL HOSPITAL

Dr Martin Kelly Plastics and Reconstructive Surgeon
Telephone:  +27 11 806-1520/1559

Dr E.A. Christofides  - Plastics and Reconstructive Surgeon
Email: 
timc@netactive.co.za 

Dr Marus Neurosurgeon
Telephone:  +27 11 806 1725

CRANIO FACIAL UNIT CAPETOWN
TYGERBERG HOSPITAL

The Craniofacial Unit at Tygerberg Academic Hospital/Stellenbosch University provides comprehensive evaluation and treatment for children with abnormalities of the face and head. This includes craniofacial deformities and cleft, lip and palate deformities. Children with craniofacial deformities have functional problems and aesthetic deformities. At our Craniofacial Unit children are evaluated by an Audiologist, Neurosurgeon, Maxillofacial Surgeon, Orthodontist, Dentist, Paediatric Geneticist, Plastic Surgeon and Speech Pathologist. A social worker also works with patients and parents to help them cope with the emotional stress of a disfigurement. All of these professionals are part of a multidisciplinary team. As craniofacial deformities are very rare and difficult to treat, we offer this service to public health patients as well as patients with a medical insurance.  Since 1985 the Tygerberg Craniofacial Unit has treated nine pairs of twins

CONTACTS:-

Mrs Christina Klaas
Email: swvz@sun.ac.za  /  021- 938 4344

Red Cross Capetown - UCT
http://www.neurosurgery.uct.ac.za/paed.html

 
Surgery stories
    

Cameron Rondi
Cameron Mark Rondi was born on the 10th of March at Olivedale Hospital. When he was born he was diagnosed with Craniosynosis, it was picked up at birth as he was born with facial distortion ...

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Blake Campbell
Blakes surgery day was 4 April 2006...

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Azia-lynn
(not so) little Azia-lynn is born 1 week early (on her original due date!) 8lb 15oz and 21 inches...

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Tiaan Heyns
Tiaan was diagnosed with Sagittal Synostosis at six weeks of age.

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Chris-Lee - Our Miracle Child
In January 2007 after several tests and treatment I was told that I will not be able to have children. 

read more >>

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Claire Badden

read more >>

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For more information or support, please contact Robyn Rondi on - robyn.rondi@hotmail.com  or  082 601 8585